By Sara Malik (asthma patient studying to go to medical school)
After getting diagnosed with severe asthma at the tender age of three, friends and family often reassured my parents that I would “eventually grow out of it” and that it was probably just “seasonal allergies.” Yes, it is true that seasonal changes can trigger asthma and that many people may outgrow this condition once they reach or pass adolescence. However, it is crucial to recognize that once an individual has developed a sensitive respiratory tract, their airways remain susceptible to asthma triggers for life.
The World Health Organization defines asthma as a long-term disease in which the “air passages in the lungs become narrow due to inflammation and tightening of the muscles around the small airways.” Asthma is a chronic disease that I have never grown out of it, and at this point, I do not know if I ever will. But, I now recognize this is okay because I have learned to accept this reality. I instead direct my energy toward finding ways to achieve and maintain my definition of a “normal” lifestyle. As a patient dealing with this condition for nearly two decades, I have learned a lot about my body and mind, which have played a significant role in helping me control my asthma.
By Michael Wong, JD (Founder/Executive Director, Physician-Patient Alliance for Health & Safety)
Sleep Apnea is a Common Sleep Disorder
Sleep apnea is a common sleep disorder. Sleep apnea patients have multiple extended pauses in breathing when asleep. This affects the oxygen supply to their bodies. As a result, approximately 20% wake up with headaches. Some suffer migraines. Still, most people think sleep apnea just disrupts sleep.
Abstract: The lesson learned from the death of Michelle McNamara – taking opioids can kill you. The opioid fentanyl can cause delayed respiratory depression and tragically death, particularly when used in combination with other sedating drugs.
Six years ago on July 27, 2011, I posted the first article on a free WordPress blog for the Physician-Patient Alliance for Health & Safety. It was titled “Is it possible to survive 96-minutes without a heart beat?”. Howard Snitzer, a man who suffered a heart attack survived after two volunteer paramedics responded and began a 96-minute CPR marathon. The ordeal involved 20 others, who took turns pumping his chest. This life-saving feat was only possible with the use of capnography readings, which told the volunteer paramedics that Howard was still alive and that they needed to continue their efforts.
This weekend marked the 7th anniversary of Amanda Abbiehl’s tragic death. Her story continues to remind us of the need for continuous electronic monitoring for all patients receiving opioids.
Amanda was 18-years-old when she was admitted to hospital for a severe case of strep throat. To help her manage the pain, she was placed on a patient-controlled analgesia (PCA) pump. The next morning, she was found unresponsive and died. Though PCA pumps are designed to deliver an exact dosage of opioid – in Amanda’s case, hydromorphone – getting the ‘right’ dosage is not a simple task. Too high a dosage can lead to respiratory depression, sometimes in minutes.Continue reading “Remembering Amanda: 7 Years After An Opioid-Related Death”→
Tyler was 18-years old when he was admitted to hospital for a pain in his chest.
It was a collapsed lung – the second time he had experienced one that year, and a condition that tall, young, slim males like Tyler can be prone to. To permanently correct the problem, Tyler underwent a procedure called pleurodesis, a common procedure to permanently prevent his lung from collapsing again. Upon the successful completion of the surgery, Tyler’s mother, Victoria Ireland said that she “breathed a sigh of relief”. Her son was going to be OK; all he needed to do was recover.Continue reading “Tyler’s Story: A Deadly PCA Medical Error”→
This is the story of how the unmonitored use of patient-controlled analgesia and nursing errors led to the unexpected death of a mother’s only child (and how it might have been prevented).
By Victoria Ireland
On Saturday, the 5th of November, 2011, my life fell apart when my only son Tyler left this world.
One week before that, on the morning of the 28th of October, I received a phone call that no mother ever wants to receive. I was asked to go immediately to the hospital. And when I arrived, I was told that Tyler was found unresponsive and had suffered two cardiac arrests. I never got to speak to Tyler again.
Those days will forever be etched in my memory. While my heart will always ache from the loss of Tyler, I am telling his story in the hope that it will help prevent similar tragedies and that no parent will have to endure the pain of losing their child to nursing errors and unmonitored use of patient-controlled analgesia (PCA) pumps.
Editor’s Note: We came across a story by Jayne Bissmire, a woman running to raise funds for the UK Sepsis Trust. We were moved by how Jayne tells her story of how sepsis–a life-threatening condition that happens when the body’s response to an infection injures its own tissues and organs–has impacted her life by nearly taking her father from her.
We know now from research that sepsis accounts for more 30-day readmissions and is more costly than heart attacks, heart failure, chronic obstructive pulmonary disease and pneumonia. Behind these numbers-driven research papers, though, are the people whose lives are impacted by the condition.
Here is a first-hand account from one such person. Thank you, Jayne, for sharing your story and that of your father with our community of supporters.